There is a new paradigm in rare diseases where each patient has now the ability to use their patient data as a superpower to speed up diagnosis, update databases and work hand to hand with physicians.
HealthData29 makes it easy to share health data sets with researchers for use in medical research in a simple and secure way.
The initiative includes a guide to good practices in the sharing and processing of this data and has been awarded by the Spanish Agency for Data Protection.
PODs technology empowers rare disease patients with their data to be able to activate applications and connections with organizations such as pharmaceutical companies and regulators.
Includes a registry of patient associations with interface for data upload
An NGO of doers, not talkers, fighting hard for a real change
We are /
Foundation 29
Open standard activists, data-driven scientists, patient-empowering advocates, enabling-technology creators and healthcare system changemakers.
We work /
from the patient, with the patient and for the patient
We want /
a new medicine model around patients
Working with their physicians for their health and the health of others in an ecosystem that openly shares its data to advance medical knowledge together.
We are a non-profit foundation. We work for a medicine in which empowered patients take control of their health through their data and work with doctors and institutions to improve their well-being and that of others.
We create technologies that allow a radical change in your capabilities as users and in the entire medical ecosystem.
The activism of patients, their families and associations are at our core. We put special focus on rare diseases. They are in our origin and in our name: February 29, world day of rare diseases.
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We want that there are no patients without diagnosis, Can you help us to achieve it?
Today at the World Orphan Drug Congress, we will share our experience of how www.dx29.ai, our AI-powered digital tool can shorten the diagnosis odyssey. We
This course has been organized with the collaboration of the Department of Healthcare Management and Innovation of the University of Malaga. Has the pandemic changed