Our Foundation

What We Do
Foundation 29 develops platforms that reduce the uncertainty and suffering that surrounds the rare disease community. Our work allows patients to control their personal medical data while helping clinicians to know their patients better, synthesize the knowledge contained in the global health community, and transform that information into better results for their patients. The energy, activism, and commitment of patients fighting rare diseases inspires everyone at Foundation 29 and powers the core of what we do. We named ourselves after International Rare Disease Day, February 29.



Nothing compares to the expertise of medical professionals. The platforms Foundation 29 has developed do not aim to replace that expertise. Instead, we’ve developed a set of tools to accentuate it, giving clinicians access to information, expertise and processing power than expands beyond their institutions and reaches around the world. However, we also believe in the power of involved, engaged patients to play a crucial role in the process. To that end, we work to empower patients to take control of their data and play an integral role on the path to a diagnosis and treatment by owning and controlling their medical data and histories.






Our Approach to Data
As the medical community has turned to technology to work more efficiently, the importance of data protection has become incredibly clear. Foundation 29 is totally committed to the idea that the patient is the sole owner of their health data and we have built our products around that. We also view data safety as an ethical obligation shared by the entire medical community and we design everything we do with that obligation in mind. Our platforms leverage the latest in data protection practices and technology to insure that the data entrusted to us is safe, secure, and used only to move toward our goal of helping the rare disease community.
Who We Are
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Julián Isla
President & founder
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Aitor Larrabe
Co-founder & board member.
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Iñigo Ascanio
CEO
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Iñigo del Hoyo
Project Manager
info@foundation29.org -
Javier Logroño
Head of Engineering
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Pablo Botas
Scientific Manager
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Carlos Mascías
Medical Manager
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María Izaskun Larrabe
Operational Support
support@foundation29.org -
Francisco Ródenas
PMO Manager
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Javier Ortiz de la Torre
Finance Manager
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Álvaro Mateos
Software Architect
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Marta Herranz
Developer
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Sandra Timón
Accesibility Advisor
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Javier Castrejón
Technology Manager
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Pablo Rodicio
Branding & Communication Advisor
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Víctor González
Administration & Accounting
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Julián Isla
Co-founder & board member
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Aitor Larrabe
Co-founder & board member.
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Aurora Berra
Board member.
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David Carmona
Board member.
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José Fdez-Rañada
Board secretary.
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María Garaña
Board member.
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Sarah Harmon
Board member.
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Carlos Mascias
Board member.
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Álvaro Morón
Board member.
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Borja Smith
Board member.